A national effort to understand a rare and under-studied disease.
INBARC is a consortium of clinicians, researchers, and patients working together to build the country's first longitudinal registry for bronchiectasis.
Our mission
To improve the understanding, diagnosis and treatment of bronchiectasis by building a shared, high-quality registry of patient data drawn from clinics across India — and to make that evidence available to the people advancing care.
Our vision
A future where bronchiectasis is diagnosed earlier, treated with therapies backed by local evidence, and no longer overlooked among India's chronic respiratory diseases.
HOW WE GOT HERE
Our story so far.
Founding
A small group of pulmonologists, frustrated by the lack of Indian data on bronchiectasis, began designing a shared data-collection protocol across their own clinics.
First sites onboarded
Four hospitals began enrolling patients using a common intake form, laying the groundwork for a standardised, multi-site registry.
Public registry launch
INBARC opened enrolment nationally, allowing any participating clinic — and their patients — to join the consortium.
14 sites, 2,100+ patients
The registry now spans 14 sites across the country and has produced nine peer-reviewed publications.
WHAT GUIDES OUR WORK
Three principles we don't compromise on.
Patient-first
Every design decision — from consent to communication — starts with what's best for the person living with the condition.
Rigorous data
Standardised protocols across every site so the data holds up to the same scrutiny as any single-centre clinical study.
Open collaboration
Findings and de-identified data are shared with the wider research community, not held back for any one institution.
LEADERSHIP
The team steering the consortium.
The full list of participating doctors across all sites is on the Registry page.
AFFILIATED WITH
Want to be part of this research?
Patients can join the registry directly. Clinicians interested in becoming a participating site can get in touch with our team.